Critical Disability Studies in Archives

"Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again."-Chicago Tribune One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent-but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people,just in time for the thirtieth anniversary of the Americans with Disabilities Act, From Harriet McBryde Johnson's account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond- this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

NATIONAL BESTSELLER . ONE OF USA TODAY'S MUST-READ BOOKS . This groundbreaking memoir offers a glimpse into an activist's journey to finding and cultivating community and the continued fight for disability justice, from the founder and director of the Disability Visibility Project "Alice Wong provides deep truths in this fun and deceptively easy read about her survival in this hectic and ableist society." -Selma Blair, bestselling author of Mean Baby In Chinese culture, the tiger is deeply revered for its confidence, passion, ambition, and ferocity. That same fighting spirit resides in Alice Wong. Drawing on a collection of original essays, previously published work, conversations, graphics, photos, commissioned art by disabled and Asian American artists, and more, Alice uses her unique talent to share an impressionistic scrapbook of her life as an Asian American disabled activist, community organizer, media maker, and dreamer. From her love of food and pop culture to her unwavering commitment to dismantling systemic ableism, Alice shares her thoughts on creativity, access, power, care, the pandemic, mortality, and the future. As a self-described disabled oracle, Alice traces her origins, tells her story, and creates a space for disabled people to be in conversation with one another and the world. Filled with incisive wit, joy, and rage, Wong's Year of the Tiger will galvanize readers with big cat energy.

In Feminist, Queer, Crip Alison Kafer imagines a different future for disability and disabled bodies. Challenging the ways in which ideas about the future and time have been deployed in the service of compulsory able-bodiedness and able-mindedness, Kafer rejects the idea of disability as a pre-determined limit. She juxtaposes theories, movements, and identities such as environmental justice, reproductive justice, cyborg theory, transgender politics, and disability that are typically discussed in isolation and envisions new possibilities for crip futures and feminist/queer/crip alliances. This bold book goes against the grain of normalization and promotes a political framework for a more just world.

To many, asylums are a relic of a bygone era. State governments took steps between 1950 and 1990 to minimize the involuntary confinement of people in psychiatric hospitals, and many mental health facilities closed down. Yet, as Anne Parsons reveals, the asylum did not die during deinstitutionalization. Instead, it returned in the modern prison industrial complex as the government shifted to a more punitive, institutional approach to social deviance. Focusing on Pennsylvania, the state that ran one of the largest mental health systems in the country, Parsons tracks how the lack of community-based services, a fear-based politics around mental illness, and the economics of institutions meant that closing mental hospitals fed a cycle of incarceration that became an epidemic. This groundbreaking book recasts the political narrative of the late twentieth century, as Parsons charts how the politics of mass incarceration shaped the deinstitutionalization of psychiatric hospitals and mental health policy making. In doing so, she offers critical insight into how the prison took the place of the asylum in crucial ways, shaping the rise of the prison industrial complex.

In Brilliant Imperfection Eli Clare uses memoir, history, and critical analysis to explore cure--the deeply held belief that body-minds considered broken need to be fixed. Cure serves many purposes. It saves lives, manipulates lives, and prioritizes some lives over others. It provides comfort, makes profits, justifies violence, and promises resolution to body-mind loss. Clare grapples with this knot of contradictions, maintaining that neither an anti-cure politics nor a pro-cure worldview can account for the messy, complex relationships we have with our body-minds. The stories he tells range widely, stretching from disability stereotypes to weight loss surgery, gender transition to skin lightening creams. At each turn, Clare weaves race, disability, sexuality, class, and gender together, insisting on the nonnegotiable value of body-mind difference. Into this mix, he adds environmental politics, thinking about ecosystem loss and restoration as a way of delving more deeply into cure. Ultimately Brilliant Imperfection reveals cure to be an ideology grounded in the twin notions of normal and natural, slippery and powerful, necessary and damaging all at the same time.

First published in 1999, the groundbreaking Exile and Pride is essential to the history and future of disability politics. Eli Clare's revelatory writing about his experiences as a white disabled genderqueer activist/writer established him as one of the leading writers on the intersections of queerness and disability and permanently changed the landscape of disability politics and queer liberation. With a poet's devotion to truth and an activist's demand for justice, Clare deftly unspools the multiple histories from which our ever-evolving sense of self unfolds. His essays weave together memoir, history, and political thinking to explore meanings and experiences of home: home as place, community, bodies, identity, and activism. Here readers will find an intersectional framework for understanding how we actually live with the daily hydraulics of oppression, power, and resistance. At the root of Clare's exploration of environmental destruction and capitalism, sexuality and institutional violence, gender and the body politic, is a call for social justice movements that are truly accessible to everyone. With heart and hammer, Exile and Pride pries open a window onto a world where our whole selves, in all their complexity, can be realized, loved, and embraced.

Formally restless and relentlessly instructive, How to Communicate is a dynamic journey through language, community, and the unfolding of an identity. Poet John Lee Clark pivots from inventive forms inspired by the Braille slate to sensuous prose poems to incisive erasures that find new narratives in nineteenth-century poetry. Calling out the limitations of the literary canon, Clark includes pathbreaking translations from American Sign Language and Protactile, a language built on touch. How to Communicate embraces new linguistic possibilities that emanate from Clark's unique perspective and his connection to an expanding, inclusive activist community. Amid the astonishing task of constructing a new canon, the poet reveals a radically commonplace life. He explores grief and the vagaries of family, celebrates the small delights of knitting and visiting a museum, and, once, encounters a ghost in a gas station. Counteracting the assumptions of the sighted and hearing world with humor and grace, Clark finds beauty in the revelations of communicating through touch: "All things living and dead cry out to me / when I touch them." A rare work of transformation and necessary discovery, How to Communicate is a brilliant debut that insists on the power of poetry.

Born Deaf into an ASL-speaking family and blind by adolescence, John Lee Clark learned to embrace the possibilities of his tactile world. He is on the frontlines of the Protactile movement, which gave birth to an unprecedented language and way of life based on physical connection. In a series of paradigm-shifting essays, Clark reports on seismic developments within the DeafBlind community and challenges the limitations of sighted and hearing norms. In "Against Access," he interrogates the prevailing advocacy for "accessibility" that re-creates a shadow of a hearing-sighted experience, and in "Tactile Art," he describes his relationship to visual art and breathtaking encounters with tactile sculpture. He offers a brief history of the term "DeafBlind," distills societal discrimination against DeafBlind people into "Distantism," sheds light on the riches of online community, and advocates for "Co-Navigation," a new way of exploring the world together without a traditional guide. Touch the Future brims with passion, energy, humor, and imagination as Clark takes us by the hand and welcomes us into the exciting landscape of Protactile communication. A distinct language of taps, signs, and reciprocal contact, Protactile emerged from the inadequacies of ASL-a visual language even when pressed into someone's hand-with the power to upend centuries of DeafBlind isolation. As warm and witty as he is radical and inspiring, Clark encourages us-disabled and non-disabled alike-to reject stigma and discover the ways we are connected. Touch the Future is a dynamic appeal to rethink the meanings of disability, access, language, and inclusivity, and to reach for a future we can create together.

In The Future Is Disabled, Leah Laksmi Piepzna-Samarasinha asks some provocative questions: What if, in the near future, the majority of people will be disabled - and what if that's not a bad thing? And what if disability justice and disabled wisdom are crucial to creating a future in which it's possible to survive fascism, climate change, and pandemics and to bring about liberation? Building on the work of their game-changing book Care Work: Dreaming Disability Justice, Piepzna-Samarasinha writes about disability justice at the end of the world, documenting the many ways disabled people kept and are keeping each other - and the rest of the world - alive during Trump, fascism and the COVID-19 pandemic. Other subjects include crip interdependence, care and mutual aid in real life, disabled community building, and disabled art practice as survival and joy. Written over the course of two years of disabled isolation during the pandemic, this is a book of love letters to other disabled QTBIPOC (and those concerned about disability justice, the care crisis, and surviving the apocalypse); honour songs for kin who are gone; recipes for survival; questions and real talk about care, organizing, disabled families, and kin networks and communities; and wild brown disabled femme joy in the face of death. With passion and power, The Future Is Disabled remembers our dead and insists on our future. This updated edition includes a new chapter and afterword by the author.

"A very important study that will appeal to a disability studies audience as well as scholars in social movements, social justice, critical pedagogy, literacy education, professional development for disability and learning specialists in access centers and student counseling centers, as well as the broader domains of sociology and education." ---Melanie Panitch, Ryerson University "Ableism is alive and well in higher education. We do not know how to abandon the myth of the 'pure (ivory) tower that props up and is propped up by ableist ideology.' . . . Mad at School is thoroughly researched and pathbreaking. . . . The author's presentation of her own experience with mental illness is woven throughout the text with candor and eloquence." ---Linda Ware, State University of New York at Geneseo Mad at School explores the contested boundaries between disability, illness, and mental illness in the setting of U.S. higher education. Much of the research and teaching within disability studies assumes a disabled body but a rational and energetic (an "agile") mind. In Mad at School, scholar and disabilities activist Margaret Price asks: How might our education practices change if we understood disability to incorporate the disabled mind? Mental disability (more often called "mental illness") is a topic of fast-growing interest in all spheres of American culture, including popular, governmental, aesthetic, and academic. Mad at School is a close study of the ways that mental disabilities impact academic culture. Investigating spaces including classrooms, faculty meeting rooms, and job searches, Price challenges her readers to reconsider long-held values of academic life, including productivity, participation, security, and independence. Ultimately, she argues that academic discourse both produces and is produced by a tacitly privileged "able mind," and that U.S. higher education would benefit from practices that create a more accessible academic world. Mad at School is the first book to use a disability-studies perspective to focus on the ways that mental disabilities impact academic culture at institutions of higher education. Individual chapters examine the language used to denote mental disability; the role of "participation" and "presence" in student learning; the role of "collegiality" in faculty work; the controversy over "security" and free speech that has arisen in the wake of recent school shootings; and the marginalized status of independent scholars with mental disabilities. Margaret Price is Associate Professor of English at Spelman College.

In Black Disability Politics Sami Schalk explores how issues of disability have been and continue to be central to Black activism from the 1970s to the present. Schalk shows how Black people have long engaged with disability as a political issue deeply tied to race and racism. She points out that this work has not been recognized as part of the legacy of disability justice and liberation because Black disability politics differ in language and approach from the mainstream white-dominant disability rights movement. Drawing on the archives of the Black Panther Party and the National Black Women's Health Project alongside interviews with contemporary Black disabled cultural workers, Schalk identifies common qualities of Black disability politics, including the need to ground public health initiatives in the experience and expertise of marginalized disabled people so that they can work in antiracist, feminist, and anti-ableist ways. Prioritizing an understanding of disability within the context of white supremacy, Schalk demonstrates that the work of Black disability politics not only exists but is essential to the future of Black liberation movements.

'My first week I learned that people refer to ILLC as "illsee". Emphasis on 'ill'. The Illinois Learning and Life Skills Center may not sound like the name of a nursing home, but that's how they work it. Naming these places is all about misdirection. Inside, it smells, sounds, and looks like your standard-issue nursing home. Same old wolf but in a lamb outfit.' Told in alternating perspectives by a varied cast of characters, Good Kings, Bad Kings is a powerful and inspiring debut that invites us into the lives of a group of teenagers and staff who live at the ILLC. From Yessenia, who dreams of her next boyfriend, to Teddy, a resident who dresses up daily in a full suit and tie, and Mia, who guards a terrifying secret, Nussbaum has crafted a multifaceted portrait of a way of life that challenges our definitions of what it means to be disabled. In a story told with remarkable authenticity, their voices resound with resilience, courage and humour.

--One of Esquire magazine's 50 Best Sci-Fi Books of All Time "Solomon debuts with a raw distillation of slavery, feudalism, prison, and religion that kicks like rotgut moonshine . . . Stunning." --Publishers Weekly, Starred Review Aster has little to offer folks in the way of rebuttal when they call her ogre and freak. She's used to the names; she only wishes there was more truth to them. If she were truly a monster, she'd be powerful enough to tear down the walls around her until nothing remains of her world. Aster lives in the lowdeck slums of the HSS Matilda, a space vessel organized much like the antebellum South. For generations, Matilda has ferried the last of humanity to a mythical Promised Land. On its way, the ship's leaders have imposed harsh moral restrictions and deep indignities on dark-skinned sharecroppers like Aster. Embroiled in a grudge with a brutal overseer, Aster learns there may be a way to improve her lot--if she's willing to sow the seeds of civil war.

In this heartfelt memoir from one of the youngest recipients of the transorbital lobotamy, Howard Dully shares the story of a painfully dysfunctional childhood, a misspent youth, his struggle to claim the life that was taken from him, and his redemption. At twelve, Howard Dully was guilty of the same crimes as other boys his age: he was moody and messy, rambunctious with his brothers, contrary just to prove a point, and perpetually at odds with his parents. Yet somehow, this normal boy became one of the youngest people on whom Dr. Walter Freeman performed his barbaric transorbital--or ice pick--lobotomy. Abandoned by his family within a year of the surgery, Howard spent his teen years in mental institutions, his twenties in jail, and his thirties in a bottle. It wasn't until he was in his forties that Howard began to pull his life together. But even as he began to live the "normal" life he had been denied, Howard struggled with one question: Why? There were only three people who would know the truth: Freeman, the man who performed the procedure; Lou, his cold and demanding stepmother who brought Howard to the doctor's attention; and his father, Rodney. Of the three, only Rodney, the man who hadn't intervened on his son's behalf, was still living. Time was running out. Stable and happy for the first time in decades, Howard began to search for answers. Through his research, Howard met other lobotomy patients and their families, talked with one of Freeman's sons about his father's controversial life's work, and confronted Rodney about his complicity. And, in the archive where the doctor's files are stored, he finally came face to face with the truth. Revealing what happened to a child no one--not his father, not the medical community, not the state--was willing to protect, My Lobotomy exposes a shameful chapter in the history of the treatment of mental illness. Yet, ultimately, this is a powerful and moving chronicle of the life of one man.

"Mental Ills and Bodily Cures" depicts a time when psychiatric medicine went to lengths we now find extreme and perhaps even brutal ways to heal the mind by treating the body. From a treasure trove of California psychiatric hospital records, including many verbatim transcripts of patient interviews, Joel Braslow masterfully reconstructs the world of mental patients and their doctors in the first half of the twentieth century. Hydrotherapy, sterilization, electroshock, lobotomy, and clitoridectomy--these were among the drastic somatic treatments used in these hospitals. By allowing the would-be healers and those in psychological and physical distress to speak for themselves, Braslow captures the intense and emotional interplay surrounding these therapies. His investigation combines revealing clinical detail with the immediacy of "being there" in the institutional setting while decisions are made, procedures undertaken, and results observed by all those involved. We learn how well-intentioned physicians could rationalize and regard as therapeutic treatments that often had dreadful consequences, and how much the social and cultural world is inscribed within the practice of biological psychiatry. The book will interest historians of medicine, practicing psychiatrists, and everyone who knows or has seen what it's like to be in mental distress.

The first book to cover the entirety of disability history, from pre-1492 to the present.